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Senate bill · S8545 (2025-26)

Relates to newborn screening for Gaucher disease

New York State Senate

Same as A9211, the matching bill in the Assembly.

Latest action Jun 2, 2026

Sponsor: Sam Sutton (State Senator, District 22, Democratic)

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From NY Open Legislation, the NY Senate and Assembly, and official rosters. This record was last updated Oct 20, 2026. About our data

Summary

Requires that newborns are tested for Gaucher disease.

Summary from NY Open Legislation. How we handle summaries

Amends the Public Health Law.

Purpose, from the sponsor's memo

This bill would add Gaucher disease to the newborn screening panel for NY state.

Filed with the bill. Read it on nysenate.gov (opens in a new tab)

Where it stands

Passed one of the two chambers; it still needs the other.

  1. Introduced
  2. In committee
  3. Up for a vote
  4. Passed one chamber
  5. Passed
  6. Enacted

Committee

Health · New York State Assembly

Also referred to Health · New York State Senate, Rules · New York State Assembly, Rules · New York State Senate.

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Cosponsors

Showing the cosponsors who are on Agora, A to Z. The official record may list more.

Read on NY Senate (opens in a new tab)
  • Democratic9
  • Republican5

This bill has cosponsors from more than one party.

Shown in neutral colors by design; Agora is non-partisan.

Show the full list (14 names)

The sponsor's argument

Why Sam Sutton says this is needed

Gaucher Disease is a serious, inherited lysosomal storage disorder that can cause progressive organ enlargement, anemia and bleeding, painful and damaging bone disease, and sometimes even neurological decline. Early detection enables timely initiation of proven therapies and prevents irreversible harm, improving long-term outcomes and quality of life. There will be minimal additional cost for hospitals, as they are already required to perform many of the tests necessary to screen for Gaucher -hospitals already screen for Pompe and MPS I, and glucocerebrosidase (the enzyme for Gaucher) is part of that same platform. The Wadsworth Center has been running the Gaucher test for the ScreenPlus pilot program for almost 10 years, and expanding should require no additional equipment. While GD is pan-ethnic, incidence is substantially higher in Ashkenazi Jewish communities, where approximately 1 in 450 births are affected and up to 1 in 10 individuals are carriers. Universal screening ensures all newborns, regardless of heritage, zip code, or access to specialists, can access early diagnosis, treatment, and genetic counseling. New York would not be alone: six states Illinois, Missouri, New Jersey, Tennes- see, New Mexico, and Oregon - already screen for GD. FISCAL IMPACT ON THE STATE: To be determined.

This is the sponsor's own case for the bill, quoted from their memorandum. It is not Agora's description of what the bill does.

Recorded votes

  • Vote: Floor vote

    NY SenateJun 2, 2026Result: passed

    (61) (0) (0) (2)

  • Vote: Committee vote · Finance

    Senate FinanceMay 12, 2026Result: passed

    (20) (0) (0) (2)

  • Vote: Committee vote · Health

    Senate HealthFeb 4, 2026Result: passed

    (14) (0) (0) (1)

Full history

  1. Jun 2, 2026

    Sent to the executive

    DELIVERED TO ASSEMBLY

    NY Senate

  2. Jun 2, 2026

    Passed a chamber

    PASSED SENATE

    NY Senate

  3. Jun 2, 2026

    Referred to committee

    REFERRED TO HEALTH

    NY Assembly

  4. May 14, 2026

    Advanced to Third Reading

    ADVANCED TO THIRD READING

    NY Senate

  5. May 13, 2026

    2ND Report CAL.

    2ND REPORT CAL.

    NY Senate

Show full history (6 earlier events)
  1. May 12, 2026

    1ST Report CAL.1055

    1ST REPORT CAL.1055

    NY Senate

  2. Feb 4, 2026

    Reported out of committee

    REPORTED AND COMMITTED TO FINANCE

    NY Senate

  3. Jan 7, 2026

    Referred to committee

    REFERRED TO HEALTH

    NY Senate

  4. Jan 7, 2026

    Referred to committee

    REFERRED TO HEALTH

    NY Assembly

  5. Nov 3, 2025

    Referred to committee

    REFERRED TO HEALTH

    NY Assembly

  6. Oct 24, 2025

    Referred to committee

    REFERRED TO RULES

    NY Senate

Read the record