Vote: Floor vote
NY SenateJan 21, 2025Result: passed
Sponsor · State Senator, District 28 · Democratic/Working Families
Senate bill · S929 (2025-26)
Provides for the protection of health information; establishes requirements for communications to individuals about their health information; requires either written consent or a designated necessary purpose for the processing of an individual's health information.
Not chosen yet
Rejected by the executive.
New York State Senate
Same as A2141, the matching bill in the Assembly.
Amends the General Business Law.
Internet And Technology · New York State Senate
This bill would govern companies that collect and sell healthcare infor- mation and provides additional rights and protections to users related to the sale and of their private health information.
Filed with the bill. Read it on nysenate.gov (opens in a new tab)
NY SenateJan 21, 2025Result: passed
Senate RulesJan 21, 2025Result: passed
Al Taylor, Albert A. Stirpe and 37 more on Agora
The sponsor's argument
Most residents of the State are under the impression that. HIPAA protects them and their health data from being accessed by third parties and sold by and to other organizations. Residents are generally unaware that their technology is constantly tracking their movements, and geolo- cation data is being sold to companies for the purposes of targeted advertisements or tracking. Most users also do not have an understanding of how much information is being collected, stored, and sold for the benefit of third parties. For example, a mobile app to track menstrua- tion cycles was recently caught selling users' data to antiabortion advocacy organizations. This bill creates a legal framework for residents to reclaim and retain control of their healthcare information. Electronic apps or websites, that are designed to provide a diagnosis or retain health information will be required to receive affirmative consent by the user to retain such information and would provide users the ability to rescind such consent. The bill also provides a legal remedy for those whose data was improperly collected or used.
This is the sponsor's own case for the bill, quoted from their memorandum. It is not Agora's description of what the bill does.
Vetoed
VETOED MEMO.135
NY Senate
Sent to the executive
DELIVERED TO GOVERNOR
NY Senate
Ordered to Third Reading Rules CAL.60
ORDERED TO THIRD READING RULES CAL.60
NY Assembly
Passed a chamber
PASSED ASSEMBLY
NY Assembly
Reported out of committee
REPORTED REFERRED TO CODES
NY Assembly
Substituted
SUBSTITUTED FOR A2141
NY Assembly
In committee
COMMITTEE DISCHARGED AND COMMITTED TO RULES
NY Senate
Sent to the executive
DELIVERED TO ASSEMBLY
NY Senate
Ordered to Third Reading CAL.101
ORDERED TO THIRD READING CAL.101
NY Senate
Passed a chamber
PASSED SENATE
NY Senate
Referred to committee
REFERRED TO SCIENCE AND TECHNOLOGY
NY Assembly
Referred to committee
REFERRED TO SCIENCE AND TECHNOLOGY
NY Assembly
Referred to committee
REFERRED TO INTERNET AND TECHNOLOGY
NY Senate
The summary comes from NY Open Legislation, the New York State Senate's public record. For more, see How we handle summaries.
The list shows the cosponsors who are on Agora, A to Z. The official record may list more.
Parties are shown in the same neutral colors.
From NY Open Legislation, the NY Senate and Assembly, and official rosters. This record was last updated Oct 21, 2026. About our data